*reposted from the original facebook post
Breaking down seems to come in waves. In hospital bathrooms. PET scan rooms. Early morning hours when I wake up and remember the road before us. Sometimes I’m not sure that the fog lifting is helpful at all. I have a lot of fear surrounding the path of chemo. But I can surrender and breathe... or worry and go down that hole of chaos in my mind. I waffle between both.
But God has gone before us so far, and he won’t leave us. He is so so kind, my friends.
Yesterday, my oncologist called to give us the PET scan results. I missed the call somehow, and in returning the call a kind woman answers the phone to reconnect me to our oncologist. She asks me my name, and then proceeds to tell me that she is Kris. A woman who messaged me days ago because she’s spent 25 years working in peds oncology and she goes to my church and heard of our journey. I started crying. She encouraged me, saying, if you get a cancer diagnosis, this is the one you want. The kids and the parents do the best. It’s so treatable.
If I hadn’t missed that call, I would not have gotten that encouragement that I so desperately needed. My mind has easily slipped into the hole of “what if” with chemo and having a sick, immunosuppressed kid. The Lord is so kind.
The other good report, Isaac’s PET scan came back great. It seems the cancer is localized to the lymph nodes in his neck and there is no sign of it anywhere else in his body. We prayed for this and God answered. She still has to test his bone marrow, and spinal fluid. But at this point she’s considering him a stage 2 diagnosis. I am still thankful for that.
Tuesday will be a big day. I’m not looking forward to all of that surgery for him, and a port being installed. Every step forward makes the nightmare feel more like reality. But we’re going to do everything we can to make this boy healthy.
I think from this point forward I’ll make a care page to update on Isaac, so people who want to follow can. I’ll also probably write on my dusty old blog. It’s therapeutic for me and I’ve been impressed upon since the first signs of this that this is a story I’m going to want to write down. I believe we’ll see miracles and the goodness of God.